a yarn/thread/fiber loving fool with MS

Not the same as I once was

Has been one hell of a ride since I checked in here last.  I think about what I to write when I wake up. I do, really.  Getting up in the mornings takes a while.  I have to “wake”  up the muscles, stretch, sometimes for 30 minutes before I even sit on the side of the bed.   Sit on the side of the bed for another              10 – 15 min to let the body get used to being up right, grab the cane and shuffle off to the bathroom.  Make it to the kitchen, make coffee..not living with out that… while it’s brewing, put the bed back together.  I REFUSE to get back in and lay there.  So I put my knitting/yarn/ what ever out, get the computer going..and so begins the day.

The new lesion is in the cerebellum , not a good thing..The cerebellum is responsible for coordinating movement, planning, motor activities, learning and remembering of physical skills and for some cognitive abilities. Among other things.
This is what I am going through:
# ataxia (difficulty in coordinating movements)
# tremors
# loss of balance and vertigo
# muscle weakness
# dysarthria (loss of coordination of the muscles controlling speech)
Speech is hit or miss right now.

I’ve had occupation and physical therapy out to the house..yea, yea.. There is a definite issue with the balance.  And there is strength loss.  Stairs are are hell, so doing some strength stuff.   Speech has taken a hit.

I’m on week 2 of the prednisone tapper…YUK!!  While it is helping the the MS crap, it has totally screwed my taste, my gastro, increased the edema that I already had.  OH, and the insomnia is horrible…sleep is not as screwed as it was last week thought.

I managed to get to the Bobbins & Needles groups at Barnes & Nobles Starbucks last night. One of my fab yarn buddies picked me up, we stopped by Michaels (YARN ON CLEARANCE!!)  and I got some great company.  Getting out is important..  These 4 walls get closer and closer.

Well, Appreciate the wind and blowing on you face, the clouds that are in the sky.  Even standing in the rain can be a good thing.

Okay, off to play with yarn…


Comments on: "Not the same as I once was" (1)

  1. It was good to see you yesterday, we have missed you! I should have brought my big granny but it’s getting really big!
    I cannot imagine what you are going through and i hope that you get better soon. John and I are thinking of you.

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