a yarn/thread/fiber loving fool with MS

Archive for the ‘knitting’ Category

Sorta, kinda, maybe

The MS continues it’s unpredictable course…. Such is the nature of the beast.  One day is “good”, the next “bad”.  One day I can use the legs, next day, they are “usable, but very limited.  It can take 15 plus minutes just to get into bed to prop them up.  The edema from the  Prednisone is HORRIBLE!! So bad now that I’ve got a spot that is “weeping”.. yea, nice clear fluid leaking out of my right ankle…around the ankle bone.. My face is swollen, Moon Face, it’s called.  Gastro stuff continues..UGH… Start on a lower dose taper next week..hopefully the side effects will ease up….I am an emotional WRECK… go from crying, to good spirits.. back to crying.. trying to get what is in the mind into words is difficult.

I’ve got the the FMLA Forms (Family Medical Leave Act) filled out and turned in.  I’ve always been stingy with my sick leave and vacation time,  so I should be “ok”.. Hope so…  I don’t think I’m going back from this….Time to put in for medical/disability retirement..then apply for Social Security Disability..Only time will tell..when I go back to see my Neurologist, it WILL be discussed..

Ok, time to go play with yarn and get the feet up..

Later folks.

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Not the same as I once was

Has been one hell of a ride since I checked in here last.  I think about what I to write when I wake up. I do, really.  Getting up in the mornings takes a while.  I have to “wake”  up the muscles, stretch, sometimes for 30 minutes before I even sit on the side of the bed.   Sit on the side of the bed for another              10 – 15 min to let the body get used to being up right, grab the cane and shuffle off to the bathroom.  Make it to the kitchen, make coffee..not living with out that… while it’s brewing, put the bed back together.  I REFUSE to get back in and lay there.  So I put my knitting/yarn/ what ever out, get the computer going..and so begins the day.

The new lesion is in the cerebellum , not a good thing..The cerebellum is responsible for coordinating movement, planning, motor activities, learning and remembering of physical skills and for some cognitive abilities. Among other things.
This is what I am going through:
# ataxia (difficulty in coordinating movements)
# tremors
# loss of balance and vertigo
# muscle weakness
# dysarthria (loss of coordination of the muscles controlling speech)
Speech is hit or miss right now.

I’ve had occupation and physical therapy out to the house..yea, yea.. There is a definite issue with the balance.  And there is strength loss.  Stairs are are hell, so doing some strength stuff.   Speech has taken a hit.

I’m on week 2 of the prednisone tapper…YUK!!  While it is helping the the MS crap, it has totally screwed my taste, my gastro, increased the edema that I already had.  OH, and the insomnia is horrible…sleep is not as screwed as it was last week thought.

I managed to get to the Bobbins & Needles groups at Barnes & Nobles Starbucks last night. One of my fab yarn buddies picked me up, we stopped by Michaels (YARN ON CLEARANCE!!)  and I got some great company.  Getting out is important..  These 4 walls get closer and closer.

Well, Appreciate the wind and blowing on you face, the clouds that are in the sky.  Even standing in the rain can be a good thing.

Okay, off to play with yarn…

Since my last post

My first week back at work after Kidney surgery was, well, exhausting.  I managed to put in basically full days.  My balance was kinda screwed more than normal, but hey, I live with it…it’s part of the Multiple Sclerosis…..

Now by Friday afternoon the NAUSEA was starting.  Since several people I had been in contact with had the dreaded stomach flu that has been going around, I started to attribute it to that…WRONG WRONG WRONG… I decided to go to the Doc around 3:30 or so…made it there, got signed in, by the time the nurse called me I could not bring my head about my waist without the room and everything else spinning….back in the exam room, the vomiting started….Nurse said yea, stomach flu, it’s going around…

Doc came in..I explained the feeling, the kidney surgery, the MS… he left, came back and said with the history, and recent events…HE WAS SENDING ME TO THE ER TO BE ADMITTED….FUCKING A……

Now….it was NOT the Stomach Flue…A new MS lesion has formed.. in the back area of the my brain that controls balance and that in turn caused the nausea…lot’s of it….. the lesion was in FULL TILT LETS FUCK WITH HER MODE……

Got to room sometime around 4 am, was started on an IV drip of Solu-Medrol…a steroid used for MS flairs… and host of pills for the nausea…  This is the first flair that has put me in the Hospital.

Stayed till Monday night…I got a PICC line put in for a 3 day course of the above mentioned  IV…once a day around noon a home nurse game and hooked up the IV to my PICC line….I felt like a scene from one of those Doc drama’s on TV… Line is out and I’m on a 6 week taper of  PREDNISONE.

I’ve made 2 berets and have again started on the yellow cardigan.  I’ve not frogged the other, but have started one on larger needles.  I think the larger needles are the ticket. We’ll see how far I get tonight.  One of the side effects of the steroids is INSOMNIA…. ya for me….

I’ve probably watched most of the  Asian cooking vids on YouTube along with any dealing with yarn, knitting, crafts, just DIY in general…

I’m BORED OUT OF MY FRICKING MIND…..

and we won’t talk about …. work ….

Later folks.

If you happen to stop by and make to the end of this..please  leave a comment.  THANKS

Bad Blogger

Should be posting more, letting the words that  are bouncing off the walls of my skull out onto paper.  But I don’t, I knit instead….. well yea, mostly I “play” at knitting.  I start a lot of projects, I go good for a bit then get about halfway…..BORED WITH IT….start something else…. New Years resolutions are to finish what’s on the needles, one cardigan, 1 shawl, 2 berets, and I’m sure there is something I’ve forgotten about.

I’ve returned to work after the surgery, UGH…have managed to work 2 full days so far this week.   I get home totally exhausted.

Speaking of work, guess I better get there.

It hurts when I sneeze, cough, laugh and so on and on and on

You know you pee as much with one kidney as you do with 2 LOL.

I received my nostepinne I won!  And new yarn to boot.  My Tuesday night knitting / yarn buddies got me a lovely Yarn Bouquet from Zen Yarn in “midnight plum”, it’s beautiful.  Photo can been see to the right via flickr feed..

I’ve managed to knit myself a beret and failed to photo it when I had camera out, will do later.

Have not knitted on what I planed to, can’t really follow a charted lace pattern on pain meds, I’m just saying…..

Later folks

I WON!

Hey blogworld folks

I won the NOSTEPINNE in the contest on my previous post!!!

I”m so excited!!

YA for me.

Just a few random thoughts

With my upcoming surgery I should have ample time to KNIT.  I hope I feel like it.  I’ve got several projects on the needles, and want to delve into the world of socks.   I have enough stash to keep me going for awhile.

One of the things I like about wordpress is the “tag surfer” .  I come across some of the most interesting blogs and knitters.

One I came across today belongs to Drop Stitch Knitter, she does beautiful work and also designs some breathtaking shawl pins, stitch markers and other items.  She is also having a CONTEST!  Her DH brought her some  Laceweight yarn, Romney Wool and Cashmere, about 350 yds and she is taking suggestions.

http://dropstitchknitter.wordpress.com/2009/12/06/really-big-post-and-a-contest/

I know what I would make out of it.  mmm, I’ve got some nice laceweight I need to use and I’ve been wanting to knit Ice-Queen and think I’ll make it one of my recovery projects.

Speaking of knitting, back to my needles.